i keep trying to weave but every time i stand up i get dizzy
dear mother i cannot weave for slender aphrodite has overcome me with dysautonomia
Tag: spoons
“Being able to feel safe with other people is probably the single most important aspect of mental health; safe connections are fundamental to meaningful and satisfying lives. Numerous studies of disaster response around the globe have shown that social support is the most powerful protection against becoming overwhelmed by stress and trauma.
Social support is not the same as merely being in the presence of others. The critical issue is reciprocity: being truly heard and seen by the people around us, feeling that we are held in someone else’s mind and heart. For our physiology to calm down, heal, and grow we need a visceral feeling of safety. “
– Bessel A. van der Kolk, The Body Keeps the Score: Brain, Mind, and Body in the Healing of Trauma
I Don’t Know How To Explain Any Clearer That I Don’t Enjoy Being This Sick
Disabled people get robbed of so many experiences. If I’m well enough to work, I’m spending every second of earned pto into being sick, doctors appointments, hospital stays, etc. I never once in a year got to take a pto day for me. Every singl one in a year went to chronic illness related things.
Now if you aren’t working because you’re sick, then you don’t have the money to go.
It’s impossible to win and be on the same playing field as abled people. It starts to wear you down after a while. You’ve earned it they same way they have but you can never cash in like them.
hey guys fun fact “uwu take a bubble bath and eat chocolate” self care and “get out of bed and take a mcfucking shower” self care aren’t mutually exclusive and making fun of the former bc u think the only self care mentally ill people should practice is the latter is uh how do i say. Odd to say the least
im having a bad executive dysfunction day & i just hung up my clean laundry & put the dirty laundry in the washing machine for tomorrow & tidied up the kitchen (wiped down the counters+stovetop and washed the pots i used to make dinner) so now i’m going to drink chocolate milk and build a blanket fort nd play pokemon for the rest of the night as a reward. see how that works
#literally both ‘uwu self-care’ and ‘you need to do this self-care’ are reliant on each other??? #one is to take care of your physical needs/responsibilities and the other is to keep you from becoming overwhelmed while doing so #and yeah sometimes you CAN’T do something and sometimes uwu doesn’t work but hey when is anything 100% reliable????? (tags via @absolutebeeb)
YES THANK YOU!
1. Please please pretty please stop assuming that uwu self care bloggers are a) neglecting our responsibilities to a degree that is unreasonable for our situation or b) advocating that others should do so. It bothers me so much to see people saying “But you can’t do that ALL the time!” when we’re not saying that.
2. If the reason why you don’t like relaxation posts is because you have trouble getting stuff done and you want help with that, OWN THAT. It is OK to need help with getting yourself to do cleaning, take a shower, etc. and not really need reminders to relax. It is not OK to act as if relaxation posts are about laziness when they serve a really important purpose for a ton of people – abled and disabled, neurotypical and neurodivergent.
anyway with regards to the opioid addiction crisis y’all really need to learn the difference between reliance and addiction, because they’re not the same.
I am reliant on opiate painkillers the same way I am reliant on my epilepsy medication: I take a set amount twice a day in order to function normally. my condition is not curable. physio will not fix it. I do not experience any highs from my painkillers, but I do experience less pain.
this differs vastly to addiction, where the amount you take is not set, may be beyond the safe dose. It will likely cause withdrawal symptoms if stopped abruptly, as well as harming your body due to the large doses ingested.
this is why it’s terrifying to hear that restrictions are going to be tightened to the extent that it will be almost impossible to get.
that kind of “reform” will only push people -reliant and addicted alike – to get it from non – official sources, where you don’t know what the fuck is in there. it will make actual addicts less safe and reliant people forced to live in agony.
the way to treat this “epidemic” is to invest in addict help schemes, rehab centres, and offer a variety of pain management systems, not this stupid blanket ban style thing that politicians are saying for brownie points.
guess that isn’t as profitable though hm.
whats wrong with you? you got some sort of……..some sorta syndrome? you got a syndrome or something? youre tryna tell me youve got like, a syndrome
[goes to doctor]: whats wrong with me doc. tell me the ‘prognosis’
doctor: well, its looking as if you have some kind of syndrome
[thinking] hmm.. thats not goodi diagnose you with symptoms syndrome
sorry to say but it seems you’ve got problems disorder

they’re making a deal to make my life as difficult as possible
[id: two people shaking hands labelled “my chronic illness” and “my anxiety disorder”]
When we talk about being fat-positive and we say, “weight is not an indication of health,” I will reblog it. But I want us to also say, “health is not an indication of value.”
I could be at any weight and I will never be healthy, because I am chronically ill. Someone might be chronically ill and fat, or they might be chronically ill and not fat, and it really doesn’t matter.
When you make it about health, you’re saying health is the pinnacle of human achievement, and you’re shitting on those of us for whom health will always be a pipe dream.
Oh
OhOkay, real talk guys. Coming from someone who’s been held up as an example of “weight is not an indication of health”, this is so SO critical.
Because guess what? I’m chronically ill. I don’t talk about it a whole lot, but I’ve got a pacemaker (from inappropriate sinus tachycardia/ autonomic dysfunction treatment), I’ve got Ehlers Danlos Syndrome, newly diagnosed adrenal insufficiency and am in the process of figuring which autoimmune disorder I have. I will be on steroids (among other medications) indefinitely.
As much as it may look different on the outside, I will never be anyone’s traditional definition of healthy, no matter my weight.
Remember this, and please, please, repeat it as often as necessary to take it to heart: “Health is not an indication of value.”
Being chronically ill is like being a phone that can’t charge past, like, 30%. You can do a good chunk of stuff when at 30%, but not as much as you’d like to before it has the go on the charger. You know when you’re charging your phone but you need to do something really quick but the charger cord won’t reach so you just take it off for a second, but it’s only at 10% so it’s constantly giving you the notification to put it back on the charger? That’s what it’s like to get up to do anything be it get a drink, go pee, check on sleeping family, whatever, at night. You are constantly being reminded by your body you need to get back to sleep and soon, but you know that you can do this small task at 10%, because you’ve done it at 3% before when you were absolutely desperate, but it doesn’t make it any less nerve-wracking because if your phone’s over heating or you left the brightness all the way up, or you misread the percentage, that 10% can go right to a power down before you get it back on the charger. People understand “I don’t wanna leave the house yet, my phone’s only at 27%” but don’t quite get “I can’t leave the house yet, my body is only at 10%, if I left now I wouldn’t make it back home safe”
this is a fabulous analogy, and I may borrow it for my chronic pain issues if op doesn’t mind because damn, it’s accurate
