
My dad found me a disability activism pin from the 70s…aaaand I love it.
[description: images of a badge that has a wheelchair and says, “Build ramps not bombs.”]

My dad found me a disability activism pin from the 70s…aaaand I love it.
[description: images of a badge that has a wheelchair and says, “Build ramps not bombs.”]
“these persons with disabilities,” says abled presenter on disability justice, “advocate with the phrase ‘nothing about us, without us’”
A checklist of things:
- Patience.
- Discuss boundaries. If those boundaries aren’t working, rediscuss them.
- Empathy and understanding. Their trauma might be very different from your own. Take time to learn what sets each other off.
- Patience.
- Be honest with one another, as much as possible. Learn how to say no. Learn how to say yes.
- Self-care, whatever that means–whether it’s isolating yourself for a bit or taking a night for the two of you.
- Take care of each other. Ask them to help you. Offer to help them.
- Patience.
- Patience.
- Please be patient, as much as you can be. Recovery is a hard road that, I think, never ends. You’re in this together. Make that a blessing.
Cripple culture is realizing you’re the person in the infomercial
a culture fixated on sniffing out “fakers” to protect “real disabled people” inevitably harms every single disabled person within that culture & only maybe a relative handful of “fakers”, who are usually mentally ill or economically disadvantaged to the point of having no alternative. stop saying your skepticism is for my benefit. stop saying my oppression is for my benefit. yes the idea of people with no grasp of my struggle claiming it is infuriating & insulting beyond belief. yes that is also oppressive. but in practice, i’d rather a dozen able bodied people successfully pass themselves off as disabled than one disabled person die in poverty because they couldn’t “prove it” to an abled person’s content
setting aside the fact that People Die From This, just the impact of faker witchunting on the emotional wellbeing of disabled people is enough to make it inexcusable
i’ve heard someone crying, literally sobbing & vomiting from pain frantically promise me that they’re not exaggerating when i never indicated for a moment that i disbelieved them, because they’re so used to the accusation. i’ve heard someone in the aftermath of a seizure quietly mumble as they regained lucidity, “are you sure i’m not faking?”
i don’t know a single chronically ill person who hasn’t at one point or another seriously questioned if they were ever really that sick at all because we’ve been so brainwashed to challenge the validity of disability that we begin to doubt the reality of our own definitive lived experiences
Thought I would share these photos of myself, I also took the pictures using a timer.
You can find my other work on Instagram @presleynassisephotography
(DISCLAIMER: Before anybody gets all upset, yes I am disabled! Yes I use a wheelchair and actually need it. Yes, I can walk sometimes. This post is about body positivity and disabled femininity, please be nice.)
Please don’t remove my caption
Much daily life becomes inaccessible to chronically ill people. And although I still work part time as a rabbi, chaplain, writer, and activist, and I am also an artist, husband, and friend, I am frequently asked whether I am anxious to get back to my “life” — as if being ill precludes living. Even in the months when I have been too sick to do anything, my life of being has still been meaningful. As a rabbi-chaplain, I meet countless sick people who are not productive, but who are nevertheless still precious. Even sick and disabled people who are not “inspiring” have a right to exist. To me, a life of illness is another complex and beautiful way of being human.
I’m bitter, trans, and my bones hurt, reblog if you’re also bitter, trans, or your bones hurt
dealing w chronic fatigue is pretty much an endless source of catch-22s. my specialist told me that a way for me to feel stronger, is to stop feeling weak. apparently the feeling of being weak is contributing to me being actually, physically weak. luv it
Doctor: so what is your pain on a scale of 1-10
me: living with a debilitating chronic pain disorder has made it so that i am unable to quantify pain at the magnitude common people feel and thus I have no idea how to answer that
Doctor: …………..so, is that a 6?