my specialist: the most important thing before you can get better, is to start by first not letting your health deteriorate any longer by setting an exercise baseline
me, constantly deteriorating: yeah sounds good
my specialist: βthe next step is try standing up every hour and doing some small physical activityβ
me, who is seeing this specialist because iβm physically fucking unable to stand up that many times in a day:
To those of us who have no idea how to flirt or how to learn to flirt,
To those of us who want to talk to girls but donβt know how to start,
To those of us who want to participate in pride events but canβt handle it due to sensory sensitivities or other accessibility issues,
Β To those of us who are still figuring out our identities,
You are so wonderful and beautiful. You will find the woman of your dreams one day who not only tolerates you, but accepts all of you and your autistic traits. The one who will find your stumbling advances cute. The one who will love your stims.Β
Celebrate this pride month.Β
Celebrate your beautifully autistic, sapphic self.Β
Celebrate with your community.Β
Celebrate the double rainbow of neurodivergent and LQBTQIA+
Iβve accepted that Iβll never be healthy again, but I would really like to be less sick.
what able bodied people think being undiagnosed is like: faking your health issue, not wanting to see a doctor because they’ll tell you what you don’t want to hear/that you don’t have that illness
what it’s actually like: after seeing nine specialists between 1997 and now the best answer you’ve gotten was “clearly there’s something wrong here but idfk what lmao”
Whenever I hear the phraseΒ βwheelchair-boundβ I feel like Iβm about to be transported to a sepia film shot in the mountains of Montana featuring me, a solemn cowboy who says one or two lines of dialogue max, and a rogue sheriff who plays by his own rules, all of whom are journeying together to a common point of interest.
I donβt think healthy people every really get chronic illness.
I have a friend I know from when we were both 6. She is the only person living nearby and so she saw me go from walking through limping to wheelchair on a daily basis. I keep her updated on my health even tho we rarely hang out anymore.
She was gonna come over yesterday and I had to cancel. She asked if I canβt hang out later that day. When I said i wonβt feel better later, that if I feel that bad in the morning later will only get worse she got annoyed and βjokedβ that Iβm just finding excuses. And I was surprised, she knows all about me being disabled after all? So, a bit taken aback, I told her itβs a normal thing for me.
βBut you got the diagnosis now, arenβt you better?? I thought youβll get better nowβ
She was honestly surprised and it made me realize a thing. They donβt get it. They donβt get that getting diagnosed only equals benefits like welfare or parking spot for us, and sometimes better pain meds but that is just like pushing luck. That itβs a forever thing. That that one day we felt good a week ago was just a bright spot and doesnβt mean we wonβt need our aids anymore, cause chronic illness is not linear and will make a great comeback in next four hours, and the next good day is planned on when weβre 70.
Cause when abled people are sick, they get better. And our illness is just an excuse for them. And when we say we will never get better they think weβre being dramatic and pessimistic.
And I donβt think theyβll ever get it, cause to get it you need to live it.
And I want my friends to stay healthy and not go through hell.
This is definitely okay to reblog and abled people are encouraged to reblog cause maybe itβll help others understand
Hello itβs me Lexa and this post is relevant again as I just had the Legit Same Talk with someone and I exhausted my number of fucks to give